Well, did not post last week since it was my by week - no chemo! Stacy did take me down for my chemo on Monday and Danny was able to get a physical that he needed. Trip down was fine, we ate lunch at Cracker Barrel which was a real treat (my mouth sores are getting a little better). Saw the doctor and clinical trial nurses who went over my issues, which I still am having some problems with the skin lesion burn from the radiation treatment I had back in Dec. So my doctor gave me a powder to use instead of wet ointment to see if that will work better. I have tried so many things! Went in at 2:15 for my chemo and they could not get my port to work, so had to try thru the vein, which I was lucky and the male nurse got the vein the very first time...thank God! They had to use Heparin to finally get the port to work so must have been a clot blockage of some type and we got out of there at 6:15. So we stopped for supper, still eating a lot of soft foods, but made it home by 10:00 p.m. We were both tired but since Stacy was off this week, she was able to sleep in yesterday. I have my schedule for next month and will need a lot of prayers for the 19th of February - that is when they will be redoing my tests - CT scan, bloodwork, and PET scan, so mark that day for extra special prayers as I know a lot of you pray for me everyday and I believe that is what has helped me thru the trials and tribulations so far.
My chemo dates are Feb 1,8 & 22. Love to all, Janice
Wednesday, January 27, 2010
Friday, January 15, 2010
Internet issues since Dec 09
We have and continue to have internet issues with our high speed internet with Comcast.
It may go out again as it has been up and down for 9 days now. Sorry for the delay.
I had first chemo treatment on Dec 29, after that incident with trying to get a line in for over an hour, the chemo nurses advised that I really needed a port. So, the next Tuesday I got my
port with chemo on Wednesday. Next appt. was scheduled for Mon, Jan 11 so we proceeded on
to Duke and after taking blood and went upstairs for my chemo, was when I found out that I had
to wait seven days before taking my chemo and it would be 7 days on Wednesday. However, it was not a total wasted trip as I got to see the radiation doctor has I have a radiation burn in the crevice of my leg near the groin area which is hard to keep clean so he did prescribe some medication which I hope will make it better...we shall see. Anyway, had my third treatment of
chemo today which they added the bone treatment again which made me so sick the last time with nausea, being sick, high temperatures and made my leg hurt worse. They say this bone treatment will need to done every 4 weeks and usually that the first time around is usually the
worse. Hope so! I also have horrible constipation because of the nausea medications. I get nausea medications before each treatment and nausea pills for 2 days after. Then to top it all off, I have developed mouth sores from the chemo treatments and they give you a mouthwash for that with lidocaine---yummy, yummy!!!! Now on bland diet with soft foods only, no spicy foods or hot, hot foods at all. Everything must be room temperature. I had the stitches removed yesterday where they put the port in for treatment by my original surgeon...he is such a sweet doctor and told me to be strong! Well, I'm trying. I did not sleep much night before last and am still tired...that's when I realized I had the mouth issue so after taking my benadryl at 8:00 pm, which did not work, I started with a real bad case of nausea so I took phenegran at 2:00 am and finally got to sleep around 4 a.m. Then I had to leave at 5:30 am this morning to be in Durham by 8:30. We were 5 hours on the road today with a total of 288 miles. When we leave, we always sign "on the road again" and call the erractic drivers "dumb asses" which makes us really laugh. Believe me, even with all of these issues/problems, I am where I need to be and that is Duke. I'm getting the best care, concern, treatment that I have ever had and very caring doctors. I have a bye week next week - no treatments yea! I go back on Monday, January 25 and Stacy is taking me to give her Dad a break. Angela took me some time ago for the liver biopsy so the kids continue to help. I've had a lot of other offers and calls too and appreciate them all. I enjoy the emails when I can get to them. After 4 visits by Comcast to fix my internet, I'm glad I never switched my phone! Phones are supposed to be up within 24 hours - yea, right! Anyway, guess I'll sign off now as don't want this blog to be too long. So many people have called about the blog not being up so hopefully this will help. I don't mean to be so descriptive in telling everyone about my health issues, but hope that maybe oneday something I have posted will help someone else if God forbid anyone would have any type of cancer. Yes, at times, I cry because I get discouraged but then I get up determined to fight even harder and do everything my doctors tell me to do. By the way, I have a new walker with brakes and a seat with a basket underneath it and guess what color it is? PINK!!! With a black seat that has the pink breast cancer ribbon on it....so neat. I'll take a picture and post so everyone can see. I get tired when I stand in lines to check in and supposed to start some strength and conditioning treatment soon, yea, right! When do I fit that in? I know - I'll practice with my walker walking around the inside of the house. Take care everyone! Love to all, janice.
It may go out again as it has been up and down for 9 days now. Sorry for the delay.
I had first chemo treatment on Dec 29, after that incident with trying to get a line in for over an hour, the chemo nurses advised that I really needed a port. So, the next Tuesday I got my
port with chemo on Wednesday. Next appt. was scheduled for Mon, Jan 11 so we proceeded on
to Duke and after taking blood and went upstairs for my chemo, was when I found out that I had
to wait seven days before taking my chemo and it would be 7 days on Wednesday. However, it was not a total wasted trip as I got to see the radiation doctor has I have a radiation burn in the crevice of my leg near the groin area which is hard to keep clean so he did prescribe some medication which I hope will make it better...we shall see. Anyway, had my third treatment of
chemo today which they added the bone treatment again which made me so sick the last time with nausea, being sick, high temperatures and made my leg hurt worse. They say this bone treatment will need to done every 4 weeks and usually that the first time around is usually the
worse. Hope so! I also have horrible constipation because of the nausea medications. I get nausea medications before each treatment and nausea pills for 2 days after. Then to top it all off, I have developed mouth sores from the chemo treatments and they give you a mouthwash for that with lidocaine---yummy, yummy!!!! Now on bland diet with soft foods only, no spicy foods or hot, hot foods at all. Everything must be room temperature. I had the stitches removed yesterday where they put the port in for treatment by my original surgeon...he is such a sweet doctor and told me to be strong! Well, I'm trying. I did not sleep much night before last and am still tired...that's when I realized I had the mouth issue so after taking my benadryl at 8:00 pm, which did not work, I started with a real bad case of nausea so I took phenegran at 2:00 am and finally got to sleep around 4 a.m. Then I had to leave at 5:30 am this morning to be in Durham by 8:30. We were 5 hours on the road today with a total of 288 miles. When we leave, we always sign "on the road again" and call the erractic drivers "dumb asses" which makes us really laugh. Believe me, even with all of these issues/problems, I am where I need to be and that is Duke. I'm getting the best care, concern, treatment that I have ever had and very caring doctors. I have a bye week next week - no treatments yea! I go back on Monday, January 25 and Stacy is taking me to give her Dad a break. Angela took me some time ago for the liver biopsy so the kids continue to help. I've had a lot of other offers and calls too and appreciate them all. I enjoy the emails when I can get to them. After 4 visits by Comcast to fix my internet, I'm glad I never switched my phone! Phones are supposed to be up within 24 hours - yea, right! Anyway, guess I'll sign off now as don't want this blog to be too long. So many people have called about the blog not being up so hopefully this will help. I don't mean to be so descriptive in telling everyone about my health issues, but hope that maybe oneday something I have posted will help someone else if God forbid anyone would have any type of cancer. Yes, at times, I cry because I get discouraged but then I get up determined to fight even harder and do everything my doctors tell me to do. By the way, I have a new walker with brakes and a seat with a basket underneath it and guess what color it is? PINK!!! With a black seat that has the pink breast cancer ribbon on it....so neat. I'll take a picture and post so everyone can see. I get tired when I stand in lines to check in and supposed to start some strength and conditioning treatment soon, yea, right! When do I fit that in? I know - I'll practice with my walker walking around the inside of the house. Take care everyone! Love to all, janice.
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